So, I bet you all thought we were over the azzdates. No such luck. I can continue to tell glorious tales of Amonte's holey ass. We spent the entire summer battling last years wounds and attending tons of medical appointments with a variety of specialists. As you can imagine Amonte was thrilled to spend his vacation OUT of the water and with his mom packing his butt everyday. By August he was all cleared up and *gasp* even got to go swimming. Oh the wonder of it all! Can you just picture me doing the cabbage patch!!!
But then August 16th rolled around. And what pray tell is so horrid about the middle of August? Well, that is when two more ugly cysts reared their nasty heads. It's now October. And guess what? After a ton of appointments, two more surgeries and a hospitalization...we are back to daily ass packin'. Lovely, no?
The good news (well not really) is that we have a diagnosis. Apparently Amonte's ever so generous sperm donor gifted him with a very rare genetic skin condition called Steatocystoma Multiplex (SM). There is no cure. There is really no treatment. To make matters worse Amonte's symptoms are not presenting in typical SM fashion. University of Michigan is perplexed. His dermatologist is a BEEEotch. The drugs have icky side effects. Our case manager at the insurance company is a dimwit. We have a diagnosis-but yet we are headed nowhere fast.
The quicksand is sucking us both in. Fuck. I hope Amonte's dressings will keep us afloat.
Tuesday, October 28, 2008
Azzdate Version 5.0
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Don't you love the hoop jumping. Are the sure it is the SM, if it isn't presenting as such, couldn't there be an alternative?? I see quite a bit of the packing on the unit I work on at the big house. They all seem to have MRSA, I know that is what they thought it was originally, have they completely ruled that out? Sorry for all the ???? I know you're looking for answers.
ReplyDeletepoor kid.
ReplyDeletei'm so sorry.
ReplyDeletethat sucks so bad for both of you!
That is No Fun! You have a diagnosis but without a cure or treatment option that has got to be frustrating!
ReplyDeleteI'm so sorry! Hang in there Girl and Good luck!
Oh damn. The suckiness of it all... Poor thing(s). How is his attitude?
ReplyDeleteglad to hear there has been a diagnosis, but cripe - can you guys get a break? i hope things start looking up soon.
ReplyDeleteI was totally hoping there would be no more azzdates. Bet Amonte isn't a happy camper. Bet he is making you suffer too. I'm so sorry.
ReplyDeleteI've been waiting for assdates... would have rather heard good ones as I'm sure you agree. I'm glad you all got at least a little reprieve this summer.
ReplyDeleteHang in there Zoe! You and Amonte both!!
Glad to hear you have a diagnosis, but sorry to hear that the help you are receiving is not the best!
ReplyDeleteDamn! It's all the sperm donor's fault! HE should be required to fix it.
ReplyDeleteEver watch the show on TLC called Mystery Diagnosis... for some people it takes years and years to get a proper diagnosis, then when they find that ONE doctor who specializes in that field it's all good. I hope you and Amonte can find that ONE doctor who can fix it all!
damn sperm donars! Poor Amonte.
ReplyDeletePoor kid. I'm sorry, Zoe. Big hugs to both of you!
ReplyDelete