Tuesday, January 15, 2008

Azzdates Version 1.0

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Please forgive Friday's cryptic post. I had been given some new information on Amonte's condition and I was feeling rather overwhelmed. I had not yet shared with him and I thought it only appropriate that we had discussed it before I spilled to all of you.

Amont's has been going to the wound care clinic for the past week now. The nurses there are wonderful and very knowledgeable. They discovered several other abscesses (including a very large one) during care. This lead them to the conclusion that Amonte may be suffering from a condition known as Hidradenitis Suppurativa.


Monday we went to the University of Michigan to see the infectious disease doctor. They quickly referred us to both dermatology (who we saw that day) and to a GI specialist who we see tomorrow. To make a very long story short-they believe it could be 1 of 3 possibilities:

  1. It was MERSA to begin with. For whatever reason cultures did not show it because of abx he was previously on.
  2. It is HS. A definitive diagnosis is difficult until you have suffered multiple outbreaks. They may be able to tell my doing a surgical biopsy. We are being referred to a surgeon who specializes in this area of diagnosis and treatment.
  3. It could be Crohn's disease. This usually peaks around age 15 and may show only skin involvement prior to all of the GI symptoms. Hopefully GI will be able to share more tomorrow.
Needless to say all of this is extremely overwhelming for both Amonte and I. None of these are wonderful options. Please continue to pray for him. And I will be keeping you updated as we know more.

Thanks again for all of your kind words of encouragement, your prayers and your phone calls. You guys freakin rock!

18 comments:

  1. Oh my gosh! And this all started or at least presented itself with a sore on his bottom? I am so sorry that you both are dealing with this. I hope that you get some answers soon.

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  2. Oh my word... none of those options are very appealing. Poor Amonte! I hope you guys get some answers/treatment soon.

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  3. As unappealing as all of the options are, it seems you are on a road that will lead you to making some progress in getting a diagnosis and hopefully some treatment to get the poor guy better.

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  4. poor kid :( so sorry you guys have to go through this!

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  5. Ooh, I hope the road before you is not as long as it sounds. Poor Amonte, I can't imagine going through that :( Sounds lke you are making progress though, as far as seeing the specialists and stuff

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  6. son of bitch! you need a break..and so does he...It's certainly going to be okay. You will bein my thoughts.

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  7. Hugs and prayers for answers and proper treatment. Sometimes simply having a "for certain" diagnosis helps. Take care.

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  8. Still thinking and praying for you guys! Good luck today! So sorry he has to go through all of this!

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  9. Oh Zoe.....this is just awful that he is going through all of this.
    Good Luck with the GI doctor.
    This thinking and praying for you guys :)

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  10. i am praying for you both! i hope you find out more soon and can hopefully treat it effectively.

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  11. poor guy... poor mom!
    I hope you get to whatever answers and then help you need quickly and as painlessly as possible... for all members involved!

    I hope it helps you to remember that you guys have lots of prayers surrounding you!

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  12. Of course you have my thoughts and prayers. {{hugs}}

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  13. What an unappealing set of options. I can't tell you enough how much I wish lots of goodness for both you, and Amonte. I think about you both quite often during the day, and if I was closer, know that I would be right there to help.

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  14. I did some research on that and hope to hell the diagnosis is wrong. Poor guy, teen years are tough enough without dealing with painful smelly butt.

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  15. Oh man, I'm sorry you guys are going through all this! I hope his doctors are able to get to the bottom of it as soon as possible!

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  16. I am so SORRY Zoe! I hope that you get some better news or at least find out for sure what is going on very soon! Good Luck! You both are definitely in my thoughts and prayers!

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